Participants will discuss practical steps to expand cooperation between government agencies, medical organizations, public organizations and business to improve early diagnosis and treatment of metabolic diseases in children. Social projects of the Life as a Miracle Foundation will also be presented. The round table is being held by the Commission of the Public Chamber of the Russian Federation on social partnership, care and development of inclusive practices, the Union of Orthodox Women and the Life as a Miracle charity foundation.
Experts will also discuss the problems of early diagnosis of rare diseases in children and study the experience of NGOs in this area; the benefits of improving the quality of medical care through training programs for medical specialists and young scientists in the field of diagnosing rare childhood diseases in the Russian Federation. Moderators: member of the RF OP commission Natalya Dmitrievskaya; Director of the Life as a Miracle Foundation Anastasia Cherepanova.
Members of the RF OP and the Union of Orthodox Women, representatives of the Russian Ministry of Health, the Life as a Miracle Foundation, the medical and scientific community, public organizations and NGOs are invited to participate. To obtain media accreditation, you must fill out a form. Address: Miusskaya Square, 7, Civic Chamber of the Russian Federation View on map Contacts Phone: (495) 132-53-03, email: press@oprf-media.ru (press service of the Public Chamber of the Russian Federation)
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